Six Friends

MEDICAL INFORMATION AND PRODUCTS

 

Alliance of Genetic Support Groups
mail: 35 Wisconsin Circle, Suite 440, Chevy Chase, MD 20815  U.S.A.
internet: http://medhelp.org/www.agsg.htm
e-mail: alliance@capaccess.org
fax: 301-654-0171
voice: 800-336-4363

Publication Informed Consent: Participation in Genetic Research Studies.

American Optometric Association
mail: 243 North Lindbergh Blvd., St. Louis, MO  63141  U.S.A.
internet: http://www.aoanet.org
fax: 314-991-4101
voice: 314-991-4100, 314-991-4101

Publishes several pamphlets on eye conditions (send self-addressed, stamped envelope), and sells models of the eye.  Voice phone extension 329 will access facts about visual conditions.  The internet site has eye care advice for parents and a fun page for the children (with optical illusions, etc).
Has a yearly campaign to provide free eye exams to some people (including families whose parents work).  Obtain information at VISION USA, 243 N. Lindbergh Blvd., St. Louis, MO 63141.

Association for the Blind and Visually Impaired
mail: 215 Sheldon S.E., Grand Rapids, MI  49503  U.S.A.
internet: http://www.grcmc.org/blindser/cblind.html
e-mail: blindserve@j2K.com
voice: 800-466-8084, 616-458-1187

Their web site shows how the world might look to people with different eye conditions.

Brian's Eye
internet: http://brianseye.com

This site has information on aged-related macular degeneration, and a nice page of anatomy information, including a diagram of the eye and a link to another anatomy site.

Canadian Foundation for Aniridia Research
mail: 3780 Verdun Avenue, Suite 2, Montreal, PQ  H4G 1K6  CANADA
internet: http://www.aniridia.org
e-mail: cfar@generation.net
voice: 514-761-5998

C/E Disabled Services
contact: Rev. Clyde Shidler
mail: P.O. Box 495, San Luis Rey, CA  92068  U.S.A.
voice: 619-967-8109

This is a nonpartisan agency which provides advocacy and resources to support third world agencies and the disabled persons in these third world agencies.

Child's Work/Child's Play
mail: Center for Applied Psychology, Inc., c/o Genesis Direct, 100 Plaza Drive, Secaucus, NJ  07084  U.S.A.
voice: 800-962-1141

Sells a book Even Little Kids Get Diabetes.

Country Hills Eye Center
location: Ogden, UT U.S.A.
internet: http://www.konnections.com/eyedoc/

Cytomegalovirus [CMV] information
contact: Children's Hospital, Biomedical Research Institute,
CMV Coordinator,
mail: 345 North Smith Avenue, St. Paul, MN 55102 U.S.A.

Directory of Low Vision Services
by: Community Services for the Blind and Partially Sighted
mail: 9709 Third Avenue N.E. #100, Seattle, WA 98115-2027 U.S.A.
internet: http://www.csbps.com
e-mail: csbps@csbps.com
fax: 206-525-0422
voice: 206-525-5556, 800-458-4888

Eye Cancer Network, The
internet: http://www.eyecancer.com/

Eye Site, The
internet: http://www.i-care.net/
e-mail: doc@i-care.net

Alternative medicine for eye conditions, including reviews of research studies.

Galaxy
internet: http://galaxy.einet.net/galaxy/Medicine/Diseases-and-Disorders/Eye-Diseases.html

Integrated Orbital Implants
internet: http://www.ioi.com/

"Welcome to the most up-to-date and comprehensive resource for information about new developments in artificial eyes and ocular implants."

International Albinism Center
location: University of Minnesota
internet: http://www.cbc.umn.edu/iac/

Internet VisionCare
internet: http://www.visioncare.com

Articles on eye care, and a page "Ask the Optometrist."

Jordon Medical Enterprises
mail: 202 Oaklawn Avenue, South Pasadena, CA  91303  U.S.A.
fax: 818-799-2586
voice: 800-541-1193, 818-799-0317

Sells adaptive  medical equipment for persons with visual impairments who have diabetes.

Kids Vision
internet: http://www.children-special-needs.org

This web site has information on children's vision care and eye health.  They can provide a referral to a specialist in your area.

Linda's Nystagmus Page
internet: http://www.geocities.com/HotSprings/Spa/3699/

Lutein Information Bureau
internet: http://www.luteininfo.com/

Macular Degeneration Support
internet: http://www.mdsupport.com
e-mail: director@mdsupport.org

Mail Order Medical Supply, Inc.
mail: P.O. Box 916, Santa Clarita, CA  91380-9967  U.S.A.
internet: http://www.momsup.com
voice: 800-232-7443

Marfan Syndrome Resource Manual
internet: http://home.talkcity.com/LOLWay/uncle_dan/marfan/pub/resourcebook/index.html

Medic Alert Foundation International
mail: P.O. Box 1009, 2323 North Colorado Avenue, Turlock, CA  95381  U.S.A.
voice: 800-344-3226, 209-668-3333

Emergency medical identification systems, including ID bracelets and necklaces.

Medical Economics Company
mail: Five Paragon Drive, Montvale, NJ  07645  U.S.A.
internet: http://www.medec.com
e-mail: corpinfo@medec.com
fax: 201-573-8999
voice: 201-358-7500

Sells WinMDR, the 1997 Medical Device Register, a Windows-based software program which lists the manufacturers in the U.S.A. of medical equipment and devices.

Med-Sell
mail: 10556 Combie Road, Suite 106219, Auburn, CA  95602  U.S.A.
internet: http://www.nccn.net/~medsell
voice: 916-268-8847

Matches sellers of used medical and adaptive equipment with potential buyers, with monthly newsletter ($8 per year) and dial-in service.

Minnesota Laboratory for Low Vision Research
mail: University of Minnesota, 504 Elliott Hall, 75 East River Road, Minneapolis, MN  55455  U.S.A.
internet: http://vision.psych.umn.edu/www/legge-lab/legge-lab.html
e-mail: info@vision.psych.umn.edu
fax: 612-625-2079
voice: 612-625-4516

National Cancer Institute
mail: Cancer Information Service, 31 Center Drive MSC 2580, Bldg. 31 Room 10A16, Bethesda, MD  20892  U.S.A.
voice: 800-422-6237

Several of their informational booklets are available in large print.

National Organization for Rare Disorders [NORD]
mail: P.O. Box 8923, New Fairfield, CT  06812-8923  U.S.A.
internet: http://www.pcnet.com/~orphan
e-mail: orphan@nord-rdb.com
fax: 203-746-6481
voice: 800-999-6673; 203-746-6518

Maintains a large database on rare and "orphan" diseases.  There is a minimal charge for search results.  Membership dues entitle one to their newsletter on research and "orphan" drugs. They have also set up an exchange for used medical equipment, which can be accessed on their web site at http://www.stepstn.com/nord/mead/

National Respite Locator Service
contact: ARCH National Resource Center, Chapel Hill Training Outreach Project
mail: 800 Eastowne Drive, Suite 105, Chapel Hill, NC  27514  U.S.A.
voice: 800-773-5433

This is a national service which can refer you to a local agency, which will provide referral to a respite care provider to come to the family's home.

Nystagmus
internet: http://www.geocities.com/HotSprings/Spa/3699/index.html

Information on different types of nystagmus, including pictures to compare.

Nystagmus Information (from Spedex)
internet: http://www.spedex.com/resource/documents/web/nystagmus.html

Nystagmus Network
internet: http://www.btinternet.com/~lynest/nystag01.htm

Parent's Place
internet: http://boards.parentsplace.com/messages/get/ppvision1.html

This section of iVillage has a Vision Issues bulletin board.

Pathophysiological Approach to the Diagnosis of Acquired Nystagmus
internet:  http://mediswww.meds.cwru.edu/dept/neurology/ocular/full003.html

Pediatric Database [PEDBASE] Home Page
internet: http://www.icondata.com/health/pedbase/index.htm

This internet site provides information on 500 childhood diseases and conditions.

Pediatric Projects
mail: P.O. Box 571555, Tarzana, CA 91357  U.S.A.
internet: http://www.pediatricmentalhealth.org
e-mail: medpubl@earthlink.net
voice and fax: 818-705-3660

Distributes specialized medical toys and books that help children and families understand health care.  The newsletter Pediatric Mental Health deals with children's coping with medical care.

Perfectly Safe
mail: 7835 Freedom Avenue N.W., Suite 3, North Canton, OH  44720-6907  U.S.A.
internet: http://www.4perfectlysafe.com
fax: 330-492-8290
voice: 800-837-5437

Their "CPR Prompt Home Learning System" enables families to learn CPR at home.  Kit includes manequins and video cassette.

Prevent Blindness America
internet: http://www.prevent-blindness.org/
e-mail: info@preventblindness.org
voice: 800-331-2020

Research to Prevent Blindness, Inc. [RPB]
mail: 645 Madison Avenue, New York, NY  10022-1010  U.S.A.

This organization funds many research projects which are vision related, most of which are in major U.S.A. medical centers.

Retinoblastoma
internet: http://www.cancergenetics.org/rbwhat.htm
internet: http://www.retinoblastoma.com/
internet: http://www.eyecancer.com/conditions/Retinal%20Tumors/retino.html
internet: http://www.rnib.org.uk/info/eyeimpoi/retino.htm
internet: http://www.ncl.ac.uk/child-health/guides/guide2r.htm

Richmond International
mail: 1021 South Rogers Circle, Suite 6, Boca Raton, FL  33487-2894  U.S.A.
fax: 561-994-2235
voice: 561-994-2112

Catalog of supplies for optometrists, including distance and near point eye test charts; color vision tests (including "illuminator light source" which provides light for the color tests without changing the color of what is printed); and pediatric occluders.

Royal National Institute for the Blind
location: ENGLAND
internet: http://www.rnib.org.uk/info/eyeimpoi/

Schepens Eye Research Institute
mail: 20 Staniford Street, Boston, MA  02114--2500  U.S.A.
internet: http://www.eri.harvard.edu
e-mail: geninfo@vision.eri.harvard.edu
voice: 617-912-0100

Scottish Sensory Centre
mail: Moray House Institute of Education, Holyrood Road, Edinburgh  EH8 8AQ  SCOTLAND
internet: http://call-centre.cogsci.ed.ac.uk/SSC/VISPages/5/VIS524172
fax: 0131 558 6502
voice: 0131 558 6501

This web page and those which follow it discuss many eye conditions and syndromes.

Selected Anomalies and Diseases of the Eye
internet: http://www.tsbvi.edu/Education/anomalies/index.htm

Stanford University Center for Marfan Syndrome and Related Connective Tissue Disorders
internet: http://marfan.stanford.edu/

Stereo Vision Project, The
internet: http://www.vision3d.com
e-mail: webmaster@vision3d.com

Has information on humans' vision in three dimensions, including a checklist for parents.

TransWeb
mail: The Northern Brewery Building, 1327 Jones Drive, Suite 105, Ann Arbor, MI  48105  U.S.A.
internet: http://www.transweb.org
e-mail: transweb@umich.edu
fax: 313-998-6710
voice: 313-998-7314

 "All about transplantation and donation."

Twin Peaks Press
mail: P.O. Box 129, Vancouver, WA  98666-0129  U.S.A.
internet: http://www.netm.com/mall/infoprod/twinpeak/helen.htm
e-mail: 73743.2634@compuserve.com
fax: 360-696-3210
voice: 800-637-2256, 360-694-2462

Carries some hard-to-find titles covering children's health topics.

Uveitis and Other Eye Conditions
internet: http://milwauttowa.homepage.com/uoec/uveitis.html

Information collected by someone who has it.

Vision Works, Inc.
mail: 3 Paradise Lane, New Paltz, NY 12561 U.S.A.
internet: http://www.visionworksusa.com/
e-mail: eyes@visionworksusa.com
fax: 413-215-7871

Vital Products
mail: Box 150, Audubon, MN  56511  U.S.A.
voice: 218-847-4661

Sells inexpensive stainless steel emergency identification bracelets and necklaces, $4.95 postpaid.

Washington Academy of Eye Physicians and Surgeons
internet: http://www.wa-eyemd.org/index.htm

Their "public information" page has information on many visual conditions.

Wilmer Eye Institute
internet: http://www.wilmer.jhu.edu/wilmer.html
voice: 410-955-5080

This is the Department of Ophthalmology at Johns Hopkins University School of Medicine.  They accept patients from all nations.  Their web site has information on the current research which they are conducting.

Woodbury Products, Inc.
mail: 4410 Austin Blvd., Dept. 250, Island Park, NY  11558  U.S.A.
voice: 800-777-1111

Sells, by mail, many brands of disposable diapers in ALL sizes.

Your Eyes and You
by: The Schepens Eye Research Institute
internet: http://www.eri.harvard.edu/htmlfiles/youreyes.html

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This page was last updated March 26, 2000.